My Significant Other is always concerned about the potentially addictive medications I am on. I try and assure him that, while dependant, I am not addicted. He doesn’t see the difference between the two. Unfortunately, when I am tired or just generically fibro-foggy I find it hard to explain. Medical dependance is a body’s need,…
Category Archives: Original Post
I Hate Housework
Here is what has helped me. Before anything, I sit outside for a few minutes each day. Unless it’s the dead of winter (here we can get double digits below zero) I sit outside for a few minutes and get some fresh air and sunlight. And when it is the dead of winter, I use…
Who Do You Sleep With?
Who do you sleep with? A partner? A pet? Alone? Myself, I tend to sleep with a partner.. There are many disadvantages & advantages to sleeping with a partner.. Disadvantages: (S)He may snore or talk while sleeping (S)He may be a restless sleeper and putting two together could be a nightmare (S)He may be used…
Koolaid Cold Syrup?
I’ve not been doing well this last week.. Been struck down with a nasty summer bug.. My SO, the sweetheart that he is, went to the pharmacy to get me some cold syrup to help me feel better.. He bought the generic store brand, but asked me what flavour. Seeing as they never taste like…
Dubious Connections? Part 3: XMRV-CFS Series
Dubious Connections? XMRV, Chronic Fatigue Syndrome Series A British study reported no XMRV virus infection in the 168 people studied. The study by German scientists yielded similar results. A third European research team was unable to find any evidence of XMRV in the blood of people diagnosed with chronic fatigue syndrome and their healthy peers….
Camping with Fibro
I saw an article of tips written up by Adrienne Dellwo, on about.com.. Having been an avid camper pre-fibro/CFS, I just had to share these tips and others.. Housing: A camper. an inexpensive tent trailer, a bigger tent, or Yurts.. All have more room to move, share & keep everything you need Clothing: Multiple changes…
How are they linked? Part 2: XMRV-CFS Series
How are XMRV & CFS linked? XMRV, Chronic Fatigue Syndrome Series Researchers from the Whittemore Peterson Institute, the National Cancer Institute and the Cleveland Clinic, have recently discovered the presence of a retrovirus in blood samples from patients diagnosed with chronic CFS/ME. The human retrovirus, identified as XMRV, has now been found to be in…
What is XMRV? Part 1: XMRV-CFS Series
What is XMRV? XMRV, Chronic Fatigue Syndrome Series XMRV stands for Xenotropic Murine leukemia virus-Related Virus. Basically it is human retrovirus similar to HIV and HTLV-1 and is a sibling virus to a virus that causes a type of leukemia in mice. Xenotropic means a foreign growth (xeno=foreign, tropic=growth). A virus that typically infects a…
Why We’re Tired
I have a theory as to why us Fibromites (people with fibromyalgia) are so tired all the time. We know that our muscles can not fix the normal daily damage we do to our bodies, unlike ‘normal’ people. We also know that our bodies heal while we sleep. Ergo facto Ipsos columbo oreo, our bodies…
Mobility Scooters
While I don’t typically drive a mobility scooter around, I have had the occasion to do so. I have noticed the behaviours of many people in mobility scooters & in many cases I have found them to be rude & obnoxious.. Just because you have a scooter, a mobility device, it doesn’t mean you get…
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