Fibromyalgia

While ‘National’ in the US, I think we Canucks can also spread the awareness of chronic illnesses that can not be readily seen.

What can you do?

• Post about the 30 Things About My Invisible Illness You May Not Know.. On your blog, on Facebook, Friendfeed, twitter, wherever you can be heard!
• Check out the Virtual conference at invisibleillnessweek.com with speakers and seminars all week, hosted through blogtalkradio.
• Share a seminar or speaker on your blog on your website, maybe ever write a review of what you thought of the topic of the speaker(s).. Check out the code for the feed just over half way down, titled “Want to Add Our Seminars to Your Web Site?”
• Put up a badge, National Invisible Chronic Illness Awareness Week logo! Or check here or here or here
• Blog about chronic invisible illnesses.. Your chronic invisible illness.. Spread the word.. You are not alone!
• Follow the Invisible Chronic Illness Awareness Week information on Twitter
• Become a fan of Invisible Chronic Illness Awareness Week on Facebook!
• Add Invisible Chronic Illness Awareness Week as a friend on MySpace!
• Share media information on other happenings for Chronic Invisible Illness Awareness Week
• Post articles on Chronic Invisible Illness Awareness Week
• Share with your twitter friends info on Chronic Invisible Illness Awareness Week
• Invite your friends to join you in spreading the word, & joining the cause!

What are considered invisible diseases? Some examples..
Multiple Sclerosis, Fibromyalgia, Lupus, Diabetes, Rheumatoid Arthritis, Chronic Migraines, Lyme disease, Complex Regional Pain Syndrome, Sjogren’s Syndrome, Chronic Fatigue Syndrome, (Partial) Dysautonomia, Ehlers-Danlos Syndrome, Myasthenia Gravis, Ulcerative Colitis, Endometriosis, Irritable Bowel Syndrome, Gastroparesis, GERD, Barrett’s Esophagus, Dilated Cardiomyopathy, Depression, Occipital neuralgia, Dystonia, Autoimmunity, Mixed Connective Tissue Disease (MCTD), Epilepsy, Bipolar Disorder, Tourette Syndrome, Ulcerative Colitis, Otosclerosis, Multiple Chemical Sensitivity, Hypothyroidism Hyperthyroidism, Dysautonomia, Inappropriate Sinus Tachycardia, Degenerative Disk Disease, Neuropathy, Optic Neuritis, Hypersomnia, Monoclonal Gammopathy of Undetermined Significance (MGUS), Undifferentiated Connective Tissue Autoimmune Disease (UCTD), Cancer, Anorexia, Bulimia & Compulsive Overeating, PostTraumatic Stress Disorder (PTSD), Schizophrenia, Heart Disease, Dementia.

Some of these names you’ve heard of, several I’m sure you haven’t.. I know there’s several I haven’t, but I have no reason to doubt the authenticity of the other authors of the “30 things you dunno” meme. They are the source of this list. I know there are many others but this gives you an idea of what varied conditions there are that fall under the category “Chronic Invisible Illnesses”. Be aware that 96% of all illness are considered “invisible” and you can’t usually see it.

Chronically Ill Unite September 14 to Blog About Invisible Illness Issues
by Lisa Copen

Patient bloggers band together to bring awareness to invisible illness issues from handicapped parking confrontations to why they hate hearing “You look so good!”

San Diego, CA — (SBWIRE) — 09/10/2009 — Who would guess that nearly half of the U.S. population lives with a chronic illness? But according to a study by the Robert Wood Johnson Foundation over 133 million people have an illness or condition, most of which are invisible, and many that cause daily pain. Illnesses can range from Reflex Sympathetic Dystrophy to diabetes, multiple sclerosis to fibromyalgia, or painful conditions like back pain and migraines.

Source: http://www.invisibleillnessweek.com

On July 7th, 2009, I was minding my own business in teh (fluff) friends application petting ofther fluff pets & posting my link occationalyl on new ppls pages. Then I was suddenly logged off. I attempted to log back in & received the following message: “Account Disabled Your account has been disabled. If you have any questions or concerns, you can visit our FAQ page here.”

Needless to say I was a tad surprised. I immediately turned around & sent the followign message to disabled@facebook.com:

Good Day..
You have just disabled my Facebook account; User: Kelli Ellis, id: 579679637. This was done, I believe, in response to me posting on the walls of users using (fluff)friends.. My post included a request to stop by my (fluff)friend’s page, the URL to my (fluff)friend’s page as well as the Agency ID code for the new Agency Wars application that was promoted on Facebook’s (fluff)friends.
I feel that this response by Facebook is excessive for the promotion of one of YOUR applications (Your is in reference to the fact that you provide it). This is not spam, and causes harm to no one. I can understand the use of suspensions for excessive posting, but again, disablement an accounts is too harsh for the nature of the issue. Thus I would like my account re enabled.
If the Facebook staff wishes to discuss this further, please do not hesitate to email me back, but further responses may not be made from this account..
Thank you for your time & consideration.
Kelli Ellis

Almost immediately I recevied back an automated canned response of:
—–Original Message—–
From: appeals+d0eccep@facebook.com [mailto:appeals+d0eccep@facebook.com]
Sent: Wednesday, July 08, 2009 4:00 PM
To: neonrose5@**********
Subject: Re: Disabled account

Hi,
The Facebook Team has received your inquiry. We should get back to you soon. In the meantime, we encourage you to review our Terms of Use (http://www.facebook.com/terms.php) for more information.
Thanks for contacting Facebook,
The Facebook Team

To be updated further..

The sole purpose of this post is to create, and potentially modify categories for this Blog. Initially, I had this categorized list.. Three columns, each with the appropriate title.. That was until I realized, well, I needed a new category.. I don’t have room for 4 columns, so I gave up on that idea . I’m just gonna put ‘em in alphabetical order and then add later as needed.