Fibromyalgia

While ‘National’ in the US, I think we Canucks can also spread the awareness of chronic illnesses that can not be readily seen.

What can you do?

• Post about the 30 Things About My Invisible Illness You May Not Know.. On your blog, on Facebook, Friendfeed, twitter, wherever you can be heard!
• Check out the Virtual conference at invisibleillnessweek.com with speakers and seminars all week, hosted through blogtalkradio.
• Share a seminar or speaker on your blog on your website, maybe ever write a review of what you thought of the topic of the speaker(s).. Check out the code for the feed just over half way down, titled “Want to Add Our Seminars to Your Web Site?”
• Put up a badge, National Invisible Chronic Illness Awareness Week logo! Or check here or here or here
• Blog about chronic invisible illnesses.. Your chronic invisible illness.. Spread the word.. You are not alone!
• Follow the Invisible Chronic Illness Awareness Week information on Twitter
• Become a fan of Invisible Chronic Illness Awareness Week on Facebook!
• Add Invisible Chronic Illness Awareness Week as a friend on MySpace!
• Share media information on other happenings for Chronic Invisible Illness Awareness Week
• Post articles on Chronic Invisible Illness Awareness Week
• Share with your twitter friends info on Chronic Invisible Illness Awareness Week
• Invite your friends to join you in spreading the word, & joining the cause!

What are considered invisible diseases? Some examples..
Multiple Sclerosis, Fibromyalgia, Lupus, Diabetes, Rheumatoid Arthritis, Chronic Migraines, Lyme disease, Complex Regional Pain Syndrome, Sjogren’s Syndrome, Chronic Fatigue Syndrome, (Partial) Dysautonomia, Ehlers-Danlos Syndrome, Myasthenia Gravis, Ulcerative Colitis, Endometriosis, Irritable Bowel Syndrome, Gastroparesis, GERD, Barrett’s Esophagus, Dilated Cardiomyopathy, Depression, Occipital neuralgia, Dystonia, Autoimmunity, Mixed Connective Tissue Disease (MCTD), Epilepsy, Bipolar Disorder, Tourette Syndrome, Ulcerative Colitis, Otosclerosis, Multiple Chemical Sensitivity, Hypothyroidism Hyperthyroidism, Dysautonomia, Inappropriate Sinus Tachycardia, Degenerative Disk Disease, Neuropathy, Optic Neuritis, Hypersomnia, Monoclonal Gammopathy of Undetermined Significance (MGUS), Undifferentiated Connective Tissue Autoimmune Disease (UCTD), Cancer, Anorexia, Bulimia & Compulsive Overeating, PostTraumatic Stress Disorder (PTSD), Schizophrenia, Heart Disease, Dementia.

Some of these names you’ve heard of, several I’m sure you haven’t.. I know there’s several I haven’t, but I have no reason to doubt the authenticity of the other authors of the “30 things you dunno” meme. They are the source of this list. I know there are many others but this gives you an idea of what varied conditions there are that fall under the category “Chronic Invisible Illnesses”. Be aware that 96% of all illness are considered “invisible” and you can’t usually see it.

Have I ever mentioned how much I hate my body?? If not, it’s official. I hate my body & not even from the Fibro this time.

Am I the only one out here that thinks this way sometimes? Not always, just sometimes?

Welcome to my Blog!

My name is Kelli..  But I am also known online as Neon Rose and it’s variations (I answer to the name Neon, IRL)..  I am also known, in scouting circles as Koolaide – yes, as in the frink (long story, I’ll tell ya some time)

This blog is about my life, my medial isues and any information I can share thereof..  I have been diagnosed with Fibromyalgia, Endometriosis, Allergies, Sensitivities, Asthma, Irritable Bowel Syndrome (IBS), Depression,  Chronic Fatigue Syndrome (CFS/ME), Hypo active Thyroid, Restless Legg Syndrome (RLS), and a host of other issues that are part and partial to go with the above mentioned. The focus here is going to be mainly on Fibromyalgia (hence the title), but will also include fibro-related issues and Endometriosis.

Why, you ask, primarily on Fibromyalgia. Well, cuz Fibro is the most significant issue at the moment.. My endo is under control, as is my asthma, RLS, allergies, etc.. Also, Fibromyalgia is also the least understood, most misdiagnosed and under treated condition that I have. If I can just help one other person, then, I’ll feel awesome cuz I have helped someone. (Why do I suddenly have a girl guide song in my head? *shrug*).

What aspects am I gonna cover? Everything I can. If you look at my categories you will see I plan to cover many areas of traditional and non-traditional medicines including Eastern medical philosophies, faith, as well as non-medical areas of life. I also plan to cover support (financial & emotional) and daily living and coping.

If you have questions, please feel free to ask.I will do my best to answer.

Note that all my content does not necessarily belong to me, however sources are always listed and author if available, if it is not original content. Please see disclaimer post for copyright information.

The sole purpose of this post is to create, and potentially modify categories for this Blog. Initially, I had this categorized list.. Three columns, each with the appropriate title.. That was until I realized, well, I needed a new category.. I don’t have room for 4 columns, so I gave up on that idea . I’m just gonna put ‘em in alphabetical order and then add later as needed.