Archive for the ‘Exercise’ Category

Fibromyalgia Pain at Night

Posted by Kelli on July 21st, 2009

Fibromyalgia Pain at Night – 10 Tips for Better Sleep
WebMD Feature By Jeanie Lerche Davis

Do you toss and turn at night because of fibromyalgia pain or discomfort?

“People with fibromyalgia tend to have very disturbed sleep,” says Doris Cope, MD, director of Pain Management at the University of Pittsburgh School of Medicine. “Even if they sleep 10 hours a night, they still feel fatigued, don’t feel rested.”

Research shows that with fibromyalgia, there is an automatic arousal in the brain during sleep. Frequent disruptions prevent the important restorative processes from occurring. Growth hormone is mostly produced during sleep. Without restorative sleep and the surge of growth hormone, muscles don’t heal and neurotransmitters (like the mood chemical serotonin) are not replenished. The lack of a good night’s sleep makes people with fibromyalgia wake up feeling tired and fatigued.

The result: The body can’t recuperate from the day’s stresses — all of which overwhelms the system, creating a great sensitivity to pain. Widespread pain, sleep problems, anxiety, depression, fatigue, and memory difficulties are all symptoms of fibromyalgia.

Insomnia takes many forms — trouble falling asleep, waking up often during the night, having trouble going back to sleep, and waking up too early in the morning. Smoothing out those sleep problems — and helping people get the deep sleep their bodies need — helps fibromyalgia pain improve significantly, research shows.

Medications can help enhance sleep and relieve pain. But doctors also advocate lifestyle changes to help sleep come naturally.

Tips to Get Better Sleep With Fibromyalgia

Creating a comfort zone at home is key to better sleep, whether you have fibromyalgia or not. It’s all about easing into bedtime feeling relaxed — and staying relaxed so you sleep through the night.

These 10 tips can help people sleep better:

* Enjoy a soothing (warm) bath in the evening.
* Brush your body with a loofah or long-handled brush in the bath.
* Ease painful tender points with a self-massage device (like a tennis ball).
* Do yoga and stretching exercises to relax.
* Listen to calming music.
* Meditate to tame intrusive thoughts and tension.
* Sleep in a darkened room. Try an eye mask if necessary.
* Keep the room as quiet as possible (or use a white-noise machine).
* Make sure the room temperature is comfortable.
* Avoid foods that contain caffeine, including teas, colas, and chocolate.

Therapies to Treat Insomnia When You Have Fibromyalgia

If you’re still having sleep problems, several therapies can help, including biofeedback, relaxation training, stress reduction, and cognitive therapy. A psychologist who specializes in sleep disorders can discuss these therapies with you.

The therapies help people handle stress better, which helps control fibromyalgia episodes, Cope says. “Fibromyalgia comes and goes,” she tells WebMD. “When you’re stressed out, that’s when it’s worse.” That’s when you’re most likely to have insomnia, too.

Medications can also help ease fibromyalgia pain at night, or directly treat insomnia. Medications to ease fibromyalgia at night include antidepressants, anticonvulsants, prescription pain relievers, and sleep aids.

No one therapy will control fibromyalgia pain 100%, Cope adds.

“Medications help some. Exercise helps some. Stress reduction helps some. Cognitive behavior therapy helps some… If you can get restful sleep, you’re going to function better when you’re awake.”

Source: WebMD

FM/CFS – What Do You Miss the Most?

Posted by Kelli on July 19th, 2009


FM/CFS – What Do You Miss the Most?
By Adrienne Dellwo

It’s the rare person with fibromyalgia or chronic fatigue syndrome who hasn’t had to give up some activity. Whether it’s something little (like an occasional hobby), or something major (like a career), we’ve all made those sacrifices.

I’ve had to give up some things because I simply can’t do them anymore, and other things because of the toll they take on my health and functionality (and some for a combination of both reasons.) I’ve given up my TV news career, my gym workouts (a weight circuit plus 45 minutes on the treadmill? Are you joking?), occasional hiking trips, major home improvement projects, etc. Fortunately, I’ve been able to gain back long walks (on good days), gardening, a social life, and enough of my brain to write a few blogs and articles every week.

Some things, though, I still don’t have back. While I hope they’ll someday be part of my life again, there’s no guarantee. I have to say, I really miss long days of shopping. I used to spend hours wandering through shops, being inspired by things I saw and just enjoying the whole experience. I also have to admit I really miss being able to eat whatever I wanted. I was recently diagnosed as gluten-intolerant (not Celiac, though), and I’m especially missing “convenience” foods — have you ever noticed how much of what Americans eat comes breaded, on some form of bread, or wrapped in a tortilla? Earlier today I broke down and ate a single chocolate chip cookie, and now I have pain in my esophagus and intestines.

On the emotional side, I miss the feeling of freedom. I used to feel free to pursue whatever hobby, vocation, interest, etc. I wanted to pursue. Now, I have limits. I miss the benefits of the higher income I could have if I were healthy. Some opportunities are no longer available to me. I resent the limitations within which I have to live.

I try to keep in mind that a lot of people have had to give up much more than I have because of these illnesses, but at some moments I just have to get angry or frustrated about it. We all have to vent now and then to keep from exploding, right?

What activity do you miss most? Is it something you think you’ll be able to “reclaim” eventually? What feelings, attitudes or assumptions about life do you miss most? Vent your feelings about it here, by leaving a comment below!

Source:Fibromyalgia & CFS Blog, About.com Guide to Fibromyalgia & CFS



I miss Amusement parks & Camping the most..
I miss the friendships I used to have where health wasn’t a factor.

Good Day

Posted by Kelli on June 20th, 2009

Today was a good day, physically speaking. Today was the Lacrosse Day of Champions for my step son’s Lacrosse League. Rob coaches 2 teams & is the House League Director.

My day started very early, so last night I was in bed before 9:30 – unheard of when I’m not crashed out. This morning I rolled out of bed at 6:10am – amazing accomplishment considering I don’t normally get up til noon. Got dressed & packed up & out the door to get the van we were renting for the day. Finished at the Rental agency by 7.30. Head up north to the arena ( I live 20km/12mi from the arena) to drop off the other half. Off to pick up my stepson & grab breakfast & back to the arena by 9.30am. Help unpack the van.

I take a few minutes to watch the Peanuts play (those are the little anklebiters) & then off to be girl friday (even tho it’s Saturday).. Most of the next few hours was spent between doing some in-house tasks & sitting down to read. Oddly enuf, I was *still* doing good.. No pain, no fatigue.. So, at 11.30 I drop off my step-son & get my lunch. I come back by 12 & eat while Rob’s on the floor coaching the Novice kids.. He’s just bouncing off the walls in enthusiasm.. I had to run (yes, run-or as close as I can get to a run) to the change rooms to get an Ice pack for an injury – twice (yes, twice) When his game finishes, I head out to pick up his lunch while the third novice game is on to see who wins. I’m back shortly after 1pm & decide to head to his parent’s place for a nap.

So I’ve been a busy body with bits of activity & bits of no activity, but no real “rest” periods, not like my doc wants (I’ll explain rest to ya’ll another time).. But I’m still not having pain.. & not the devastating fatigue of the CFS.. What I haven’t done by this point is taken my meds… at 12 noon, I am supposed to take my codeine contin – 12 hour release that I take at 12 noon & 12 midnight.. So, no wonder when I wake up form my nap & I’m sore and achey and still & starting to hurt.. *this* is when I realize I haven’t taken my meds. Of course, where are they – the arena.

When I get to the arena Rob’s ready to go.. immediately loads up the van & off we go – no real time for me to take anything.. with a detour to Dollaramma & I fergot about my meds again.. So I don’t get my meds until dinner – we hit the Keg on the way home and while waiting in the bar for our table, I take them.. 5 of ‘em.. ya, that’s a small chunk of medication. But interestingly enough, I’ve started to feel better after I had gotten moving around.. And interestingly, My leggs didn’t ache when I got up from sitting at dinner like they normally do.. When I sit for extended periods, like a social chatty dinner that lasts almost 2 hours, then ya, the leggs are usually difficult to get moving..

So, now we’re home, the van’s unpacked, I’ve got the overnight info for parking the van cuz we’re not going to take it back tomorrow morning. I’ve gone on FaceBook & Feed my virtual roses.. I’ve done a blog post & now writing this one at almost 11pm and I am still going.. Where’s Rob? Crashed out on the bed. But I am heading to bed soon too..

But it’s been a good day… Am I gonna feel it tomorrow? Unfortunately, yes.

Yoga for Breakfast: 15 Minutes to Free Your Mind

By Walter Armstrong

It’s morning in America, fellas, so wake up and shake your asana! Not your style, you say? You’ll take a power-aerobics class and a sauna after work instead? We don’t think so.

Come on, Madonna does it. And your instructor is a total stud and way enlightened. Meet Robert Young, one of Toronto’s top fitness gurus. Yogi Young’s specialty is Fusion Yoga, a unique workout he developed fusing aerobics, Pilates, gymnastics, and dance with different types of yoga.

“I came to yoga like a lot of gay men,” Young says, “after years of doing aerobics, weights, cardio, Jane Fonda-type stuff. I reached a point where improving my flexibility was an issue.” But unlike a lot of gay men, Young wasn’t just looking for a little cross-training add-on to prevent the injuries or boredom so common among devoted gym bunnies. A world-class aerobics competitor, Young had placed as high as fifth in international championships and wanted to break into the winner’s circle. Flexibility was an issue. So he took up the Byzantine study of ballet in his late 20s, but needed a more immediate payoff.

That’s when he turned to yoga and never looked back. “At first, for me, yoga was the fastest, most efficient flexibility training. You sink into a pose, and the tension just dissolves,” he says. “Its yang side was all I was after. But as my commitment got deeper, I began tuning in to its yin, the subtler, spiritual aspects beyond the goal-oriented level.”

Out went the bling bling of global competition, in came the om of personal compassion.

But here at RealJock, we know not everyone is logged on for a total life transformation. So let’s start slow, with 15 minutes in the morning, two or three times a week. Just try our yoga-for-breakfast program for one month. We’re not talking marriage. We promise you’ll be back for more.

While there are thousands of yoga poses (asanas), as befits any 5,000-year-old discipline, Young advises beginners to stick with a few basic, classic postures. “These are symmetrical and incorporate each body part, and both right and left sides,” he says. “Yoga means ‘yoke’ or ‘uniting,’ and you can come to it to develop one capacity—flexibility, say, or strength, balance or breathing—but you quickly learn that you need to develop all the others at the same time. These poses help you feel that.”

Young recommended that RealJock contact Ronnilyn Pustil, one of Toronto’s top yoga instructors and a professional writer, for a how-to for these four a.m. asanas. Pustil has the prose for pose, and she was all about sharing with her gay brothers at RealJock. Check it out:

Photo 1 – Cow

Photo Credit: Kevin Caudill
Photo 2 – Cat

Photo Credit: Kevin Caudill

1. Cow/Cat Pose (see Photos 1 and 2)
This starter will wake up your spine, centering your body for the rest of your routine. It’s actually a combo (yoke!) of two poses, one flowing into the other. This will give you a feel for how to master moving from pose to pose through your yoga breakfast over the month—but first you have to nail each one.

1. Begin in tabletop posture on a yoga mat or exercise mat (on all fours, with wrists directly under shoulders, knees under hips). Don’t let your shoulders sag. Press into your hands and lengthen, strengthening through your arms.
2. As you move through this, let the movement begin in your pelvis and follow through your spine like a wave. Your head is the last thing to move. Now, inhale Cow: Flare your butt toward the wall behind you. Arch your back. Let your belly sink toward the ground. Reach your heart away from your sitting bones, slide your shoulders away from your ears. Your neck is part of your spine, so don’t crank it back—leave a little room so if someone wanted to kiss you on the back of your neck they could.
3. Now, exhale Cat: Tuck your tail end round your back like the scared cat on Halloween. Tuck your lower belly in toward your spine. Let your head hang. Make it round.
4. Do six to nine sets, moving to your own breath. Then, from tabletop, tuck your toes to look into the floor and press your sitting bones up into Downward Dog, coming into an upside-down V shape.

Photo 3 – Downward Dog

Photo Credit: Kevin Caudill

2. Downward Dog (Adho Mukha Svanasana) (see Photo 3)
This classic-as-Lassie pose, Downward Dog is another spinal stre-e-e-e-e-etch from tip to toe that strengthens the arms and wrists and the legs and ankles, making it an all-purpose favorite. D-Dog is also part of the Sun Salutation sequence, so why not start the day with a full-body bark to the great ball of fire?

1. Start in the upside-down V shape with your feet hip-width apart and your hands flat on the floor at the front of your V. Spread your fingers open and root your palms and knuckles into the floor. Pull up in your wrist, arms. Open and soften your shoulders, creating some space on either side of your neck.
2. Lift your lower belly up and in. Lift your sitting bones; feel the sensation of flaring your butt open. Root your heels so that they’re yearning for the ground.
3. Press the tops of your thighs toward the wall behind you. Lift your kneecaps up toward your thighs, so quads are active. Feel the entire backside of your body lengthen and open.
4. Do five to seven sets. D-Dog will eventually become a resting pose once you build the strength in your arms and get the alignment right.

Photo 4 -Mountain Pose

Photo Credit: Kevin Caudill

3. Mountain Pose (Tadasana) (see Photo 4)
Just as Cow/Cat Pose is a warm-up for Downward Dog, Mountain Pose will get you hot for Warrior—and all of yoga’s many standing asanas. So Mountain is a must-do…anytime, anywhere. “You can do Mountain while waiting for the bus,” Young says, “and instead of being negative about the wait, you bring balance and awareness into it.”

1. Standing straight with your arms at your side and your palms facing forward, come up onto tippy-toes. Lift you toes off the mat and spread them wide, then lower them down, one by one, beginning with the baby. Feel your weight distributed evenly on both soles of your feet. Send roots down to the earth’s core; send energy up your legs.
2. Once you feel grounded down, begin to grow tall, reaching the crown of your head up to the sky. Drop your tail down, lengthening the lower back. Make sure your palms are faced forward so there is an uplifted feeling across the front of the chest. Slide the shoulder blades down your back. Relax your face.
3. Do six to nine sets. There should be a whole lot of effortless space between your head and your feet in this pose. You are exerting effort, but your body should not be tense. Note the difference between effort and tension.

Photo 5 – Warrior II Pose

Photo Credit: Kevin Caudill

4. Warrior II Pose (Virabhadrasana II) (see Photo 5)
Not just any old grunt, this warrior is an incarnation of the Hindu god Shiva the Destroyer, who, with his 1,000 heads, eyes, and feet, wearing tiger and breathing fire, may seem a bit much before your first coffee. Don’t panic: The spin is spiritual, as in making war on delusion and desire, the source of human suffering. But feel free to substitute your boss or ex-boyfriend as you stretch and strengthen in this pose.

1. Stand in Tadasana. Step your right foot back three or four feet and turn your right toes in at a 45-degree angle. The left foot is pointing straight ahead, heel aligned with the arch of your right foot.
2. Root your back foot into the floor, sending energy down that leg into the foot, strong back leg. Inhale, take the arms out to your sides in a T-shape, with the palms facing down. Gaze out over your front fingertips. You are gazing off into the horizon, ready for whatever may lay ahead in your day.
3. Exhale, bend the front knee. Make sure the knee is directly over the ankle. Your intention is to have the front thigh parallel to the floor. It may not happen, but that’s your intention, and sometimes the mental intention behind an action is more important than the action itself.
4. Reach through the middle finger of each hand and keep your torso right in the middle. Lengthen the inseam of your front thigh so the knee does not track inward. Tuck your tail in slightly. Lift the front side of your body (your heart) and allow your shoulder blades to melt down your back.
5. Hold Warrior pose for six to nine breaths. Come out carefully, inhaling and staying balanced as you straighten your front knee. Now, do it again, same steps, other side. Do each pair five to seven times.

Before hitting the shower, just sit for a minute, concentrating on the rhythm of your lungs breathing and your heart beating. That’s you, babe, your divine spark of life. Namaste.

Walter Armstrong is a freelance writer and editor in New York who served as the editor-in-chief of POZ magazine for six years. Armstrong has also worked at Rolling Stone, Men’s Journal, Us, GQ, OutWeek and numerous other magazines.

Source: http://www.realjock.com

What do I do?

Posted by Kelli on May 30th, 2009

For my fibromyalgia, I currently take the following Medications/supplements

  • Multi-vitamin – Naturapathy Dr does not recommend Centrum or most pharmacy brand multi’s
  • Calcium & Magnesium with vitamin D – Calcium cuz Women with Endo are more susceptible to Osteoporosis. Mg & D to help absorb the Calcium. The Magnesium also to help with muscle spasms & charlie horses. I have found that it has helped.
  • Fish oils – Generic fish oils, minimum 1000mg a day .. Well, I try to. Naturapathy Dr recommended 1000mg-3000mg daily of the EPA+DHA to help with mental acuity. I’m still waiting for the fog to lift, but I’m not usually getting enough to impact because I fog up & forget.. Lovely catch 22 there.
  • B complex to help with stress and ensure that I get enough B’s. No, I don’t take a stress formula. Just a normal B complex.. either 50mg or 100mg
  • Codeine Contin for maintenance pain.
  • Tylenol #3 for breakthru pain
  • Oxy codone for severe breakthru pain
  • Flexeril (Cyclobenzaprine) as a muscle relaxer. I find it better than anything OTC..
  • Probiotics to help regulate my digestive track – it works, ‘cept when I have an IBS flare or food sensitivity
  • NSAID, but it’s for my Endometriosis, so I don’t really know if it does impact my FMS or not.

For my fibromyalgia, I currently participate in the following exercise:

  • Aquafit, really carefully – I’m just getting back into exercise, so I am trying to get to the gentle classes. My local YMCA gym has a class or arthritics and for osteoporosis. Aquafit is a good choice because of the buoyancy of the water, it doesn’t impact my knees, and it’s a gentle eardio
  • Seriously, right now that’s it. I need access to a hot tub to do further exercise to keep my body warm.

For my fibromyalgia, I intend to return to the following exercises:

  • Yoga with the hot tub – Yoga provides gentle stretching while working on core strength and balance. The hot tub helps to keep muscles relaxed afterward.
  • Keeping up with Aquafit – see above :)
  • Walking the track to music with the hot tub – I got into walking when my nieces were born, walking with my sister. After I joined the Y and my nephew was born, I would take him in his stroller to walk him around the track. He’s too old now, but I have found it enjoyable with my MP3 player (or CD player back then). I sometimes dance a little bit and my pace changes with the music I’m listening to. It’s hard to overexert myself. :) The hot tub helps to keep muscles relaxed afterward.

A benefit from the exercise is that I tend to be tired out afterward and relaxed. This makes evening workouts idea in that I go home, go straight to bed and will sleep well, with a decent amount of healing rest. This improves me, physically, emotionally and mentally for the next day.

For my fibromyalgia. my spiritual side is limited. I don’t go to church often, however I do find solace in my home church’s sanctuary. I’ve moved away from my home church and have yet to try out the sanctuary here. I also find the same ’state of grace’ from music, especially my churchy music :)

For my fibromyalgia, because of my physical limitation, I am limited socially. Most of my social interaction is via the internet on Twitter, Facebook, Email, etc.. The alternative to that in real life is with my SO and his friends. Most of my friends no longer talk to me, or are too far away for more than email. The classes as the Y present a new socialization source, which I hope to be helpful. With the improvement of my health I would like to return to scouting in some sort of part-time or limited capacity.

For my fibromyalgia and my cognitive abilities, I am starting this blog. It will help keep me thinking and requires research. It also provides a creative outlet. I also enjoy doing word searches and have, on recommendation on my therapist, started to colour and have other crafts options available to me.

For my fibromyalgia and an emotional aspect, I have a councilor and have beep placed on anti-depressants. While my time with her is limited I do find that I feel better asfter I speak with her. Additionally I have the support with my SO. While sometimes he can not understand and becomes frustrated, I know he only has best intentions where I am concerned.

How do I cope? Not well. Other than the limited exercise mentioned above, the odd screaming match and the rarer still church visit, I have no real outlets..  Which sucks. Before I got sick, my outlets for frustration and anger and stress were physical. With the fibro, I have lost that. Any suggestions are welcome :)

Categories

Posted by Kelli on May 24th, 2009

The sole purpose of this post is to create, and potentially modify categories for this Blog. Initially, I had this categorized list.. Three columns, each with the appropriate title.. That was until I realized, well, I needed a new category.. I don’t have room for 4 columns, so I gave up on that idea . I’m just gonna put ‘em in alphabetical order and then add later as needed.

  • Ability/Disability, Allergies, Alternative Medicine, Alternate Treatments/Medications, Articles, Assisting Devices, Auto-immune disorders, Awareness Ribbons, Anger
  • Behaviour
  • Chemical Sensitivities, Chronic Fatigue Syndrome/ME, Cognitive Limitations
  • Depression and Mental Health, Disability funds [CDN], Disability funds [US]
  • Endometriosis, Exercise, Emotions
  • Fatigue, Fibromyalgia
  • Goodsearch.com, Grooming, Gender
  • Hypo/Hyper-Active Thyroid
  • Intro, Irritable Bowel Syndrome
  • Legislation [CDN], Legislation [US], Links
  • Medications, Memory Impairment, Music
  • Non-medical
  • Pain, Personal, Personal Activities, Physical Limitations, Physicians, Possibilities, PuppyDog
  • Quotes
  • Relationships, Research, Restless Leggs Syndrome, Rest
  • Spirituality/Faith, Spoon Theory, SleepSupport, Stress, Supplements
  • Tips, Twitter
  • Vent
  •