Archive for the ‘Depression and Mental Health’ Category

Coping With The Holidays

Posted by Kelli on December 21st, 2009


Coping With The Holidays
By Kelli Ellis

I am my own worst enemy. Like many others with Fibromyalgia and Chronic Fatigue, I find the holidays a highly stressful and painful time of year instead of the joyful and happy time it should be.   I am too focused on the perceived expectations of others instead of the reality of my limitation and restrictions..  I know many of us want to accomplish what our bodies are simply not capable of, so we have to adjust our outlook and re-evaluate our priorities. The holidays are all about spending time with those we love most – keeping time and energy for what we hold most precious and dear. Doing so will help reduce the stress and thus the pain and emotional issues that crop up at Christmas.

Pace Yourself.. 
When you think “I’ll just  visit 1or 2 more shops, go up 1 or 2 more aisles, wrap 1 or 2 more presents, bake 1 or 2 more trays of cookies or do that 1 or 2 more things.” – Don’t! Stop before you get to that tired or hurt point. Don’t deal with a fibro or cfs flare, prevent one.

Decorate, but not too much..

  • Have a smaller tree with few decorations.   I have invited over the nieces in past and we made an afternoon of putting up the tree.

  • Have someone put up the outdoor lights.
  • Get a nativity scene that is pre-made as one unit and/or lightweight, so you don’t have to lug many pieces.  I have a smaller plastic Precious Memories one (which the kids love to play with) and a small water fountain of Joseph, Mary & baby Jesus.
  • Celebrate

  • Choose carefully to go only to 1 or 2 holiday parties, don’t accept every invite.

  • If you can, spend time with those you hold dear, not those who will cause stress.
  • Plan ahead how long you plan to stay and stick to it.
  • Always keep a supply of regular meds on hand, in case.
  • Delegate

  • Pass on some of the holiday chores to others so that while everyone shares the joy, they also share responsibility.

  • Cooking

  • Share these responsibilities or making an easier selection.

  • Do a pot luck dinner.
  • Choose a one dish dinner to limit the number of dishes.
  • Choose easier recipies.
  • Prep or make whatever can be done beforehand and refridgerate or freeze.
  • Keep to your normal eating habits as much as possible & do not overdo it on sweets and other foods.
  • Baking

  • Do a holiday cookie/snack exchange.

  • Bake cookies in stages – many recipes require overnight in the fridge.
  • Cheat – buy your cookies.. I know, not the same, but nothing’s the same anymore, is it?
  • Shopping

  • Online/catalogs/mail order gifts.

  • Gift cards & gift certificates.
  • Plan ahead, make a list & write it down.
  • Organize your trips into several short shopping trips.
  • Shop in the morning, or later in the evening when the crowds are thinner.
  • Start early – once I started on Dec 26th.
  • Take regular breaks to rest.
  • if you use a mobility device (cane, crutches, walker), take it with you even if you don’t need it yet
  • Use a shopping cart for stability, to carry parcals & outterwear.
  • Use a coat check if your mall has one so you don’t have to worry about your jacket.
  • Get salespeople for help if you can find them.
  • Always keep a supply of regular meds on hand, in case.
  • Wrapping Presents

  • Wrap using gift bags & tissue paper.

  • Take advantage of on-site wrapping services – many are for charity.
  • Holiday Cards

  • Do them well ahead of time like October or November,

  • Make labels so you’re not writing address after address, if even it’s ony the return address.
  • Above all – KISS! Keep It Sweet and Simple!

    Posted via email from Kelli’s Posterous

    30 Things by Others (invisible Illness)

    Posted by Kelli on September 17th, 2009

    You have seen *my* post of the 30 Things You May Not Know about my invisible illness(es)..  here are others, and I made sure to the best of my abilities that there are no duplicate blog entries..  duplicate names mean different people.. Note that this is by no means a complete list.. please feel free to sign in & add more!

    Jenni – http://www.chronicbabe.com/articles/820/

    Lisa – http://chronicillnesssupport.wordpress.com/2009/08/29/30-things-about-my-invisible-illness-you-may-not-know/

    Diana – http://somebodyhealme.dianalee.net/2009/09/invisible-illness-week-30-things-you.html

    Amanda – http://www.crazymiracle.com/read/30_things_you_may_not_know/

    Heidi – http://livewithdesire.com/home/2009/9/11/30-things-about-my-invisible-illness-you-may-not-know.html

    Connie – http://mychroniclife.com/2009/09/07/30-things-about-my-invisible-illness/

    Betsy – http://wordmetropress.com/migrainejourney/?p=315

    Heather – http://aloofelf.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Selena – http://ohmyachesandpains.blogspot.com/2009/08/30-things-about-my-invisible-illness.html

    Elise – http://ebbtideds.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Ashley – http://youngwifestale.com/blog/?p=911

    Crystal – http://gpadvocate.wordpress.com/2009/09/02/hello-world/

    Landileigh – http://www.landileigh.com/1/post/2009/09/you-may-not-know.html

    Petula – http://www.petulaw.com/2009/09/30-things.html

    Rachel – http://cranberryteatime.blogspot.com/2009/08/30-things-about-my-invisible-illness.html

    Breecy – http://www.icarecafe.com/index.php?page_id=1000&site_page_id=301&sblog_id=312&post_id=378

    Antti-Juhani – http://antti-juhani.kaijanaho.fi/newblog/archives/576

    TurtleMom3 – http://morningsidedrive.wordpress.com/2009/09/15/30-things-about-my-fibromyalgia/

    Elizabeth – http://www.melizabethwilliams.com/journal/?p=33

    Tricia – http://www.fibromyalgiaisnotmylife.com/2009/09/30-things-about-my-invisible-illness.html

    Teri – http://www.teriskeyboard.com/2009/09/30-things-meme.html

    Teresa – http://toomanyheartbeats.blogspot.com/2009/09/30-things-about-my-illness-you-may-not.html

    Lauren – http://novelpatient.com/2009/08/31/30-things-about-my-invisible-illness-you-may-not-know/

    Mary  – http://cushingshelp.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Natalie – http://www.definatalie.com/archives/259-30-Things-About-My-Invisible-Illness-You-May-Not-Know.html

    Kim – http://cupcakesandmace.com/2009/09/18/30-things-about-my-invisible-illness-you-may-not-know/

    Gina – http://diabetestalkfest.com/blog/?p=254.

    Ruth – http://desertlibrarian.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Jaimie – http://www.multitaskingmama.com/2009/09/youmaynotknow/

    DimpleGirl 78 – http://dimplegirl78.com/post/188817660/30-things-about-my-invisible-illness-you-may-not-know

    Stacey – http://fibroandi.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Simla – http://www.facebook.com/note.php?note_id=149265322989

    Eva – http://nofun-eva.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Sara – http://silence-is-betrayal.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Elizabeth – http://eawake.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Aliza – http://www.alizahausman.net/2009/09/30-things-about-my-invisible-illness.html

    Michele – http://ramblingsofinsanemind.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Jasmine – http://jasminepw.blogspot.com/2009/09/30-things-about-jasmines-invisible.html

    Lindsay -http://bodybits.sneakykitty.com/index.php/2009/09/13/30-things-about-my-invisible-illness-you-may-not-know/

    Helen – http://pensandneedlesblog.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Deborah – http://phoenixpdx.livejournal.com/29215.html

    Eynn – http://erynn999.livejournal.com/479258.html

    Melanie – http://melanie-journey.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Nickie – http://puppybraille.livejournal.com/620071.html

    Kristen – http://www.atasteoflyme.com/2009/08/30-things-about-my-invisible-illness.html

    Beth – http://bethmorrissey.wordpress.com/2009/09/16/invisible-illness-week-2009/

    lovies – http://www.dailystrength.org/people/165804/journal/1686760

    Steph – http://www.livingwithendometriosis.org/steph/2009/09/30-things-about-my-invisible-illness-you-may-not-know/

    Ricky – http://rb.dreamwidth.org/257961.html

    Amanda – http://allflaredup.wordpress.com/2009/09/09/get-ready-for-invisible-illness-week-beginning-sept-14th/

    Synclair – http://synclair42.livejournal.com/200745.html

    Stephanie – http://stefparkspeaks.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Clayton – http://claytonbye.blogspot.com/2009/08/30-things-about-my-invisible-illness.html

    Barbara – http://stanford.wellsphere.com/pregnancy-fertility-article/30-things-about-my-invisible-illness-you-may-not-know/786747

    Etana – http://etana.livejournal.com/637613.html

    Deborah – http://www.greebledok.com/?p=596

    Kathy – http://fibrochondriac.wordpress.com/2009/09/05/30-things-about-my-invisible-illness-you-may-not-know/

    Amiee – http://health.families.com/blog/national-invisible-illness-awareness-week-september-14-20-2009

    Spencer – http://www.thesassylime.com/?p=684

    Del – http://wylddelirium.livejournal.com/964430.html

    Joanna – http://joanna-herlifeinanutshell.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    CableFlame – http://c4bl3fl4m3.livejournal.com/609044.html

    Rachel – http://talesofmy30s.wordpress.com/2009/09/01/30-things-in-advance-of-invisible-illness-week/

    Eileen – http://fireinmybrain.blogspot.com/2009/09/30-things-about-my-invisible-illness.html

    Teri – http://www.healthcentral.com/migraine/c/123/85922/invisible-migraine

    Hellish Fairy – http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=32674210&blogId=509432155

    Kimberly – http://www.fibroandfabulous.com/2009/09/30-things-about-my-invisible-illness.html

    Deb – http://debshealth.com/4966/30-things-about-my-invisible-illness-you-may-not-know/

    Burnt Sienna -  http://burntsienna.wibsite.com/2009/09/01/30-things-about-my-invisible-illness-you-may-not-know/

    Posted via email from Kelli’s Posterous

    Invisible Illness Awareness Week

    Posted by Kelli on September 13th, 2009

    September 14 – 20 2009
    is National Invisible Chronic Illness Awareness Week


    While ‘National’ in the US, I think we Canucks can also spread the awareness of chronic illnesses that can not be readily seen.

    What can you do?


    What are considered invisible diseases? Some examples..
    Multiple Sclerosis, Fibromyalgia, Lupus, Diabetes, Rheumatoid Arthritis, Chronic Migraines, Lyme disease, Complex Regional Pain Syndrome, Sjogren’s Syndrome, Chronic Fatigue Syndrome, (Partial) Dysautonomia, Ehlers-Danlos Syndrome, Myasthenia Gravis, Ulcerative Colitis, Endometriosis, Irritable Bowel Syndrome, Gastroparesis, GERD, Barrett’s Esophagus, Dilated Cardiomyopathy, Depression, Occipital neuralgia, Dystonia, Autoimmunity, Mixed Connective Tissue Disease (MCTD), Epilepsy, Bipolar Disorder, Tourette Syndrome, Ulcerative Colitis, Otosclerosis, Multiple Chemical Sensitivity, Hypothyroidism Hyperthyroidism, Dysautonomia, Inappropriate Sinus Tachycardia, Degenerative Disk Disease, Neuropathy, Optic Neuritis, Hypersomnia, Monoclonal Gammopathy of Undetermined Significance (MGUS), Undifferentiated Connective Tissue Autoimmune Disease (UCTD), Cancer, Anorexia, Bulimia & Compulsive Overeating, PostTraumatic Stress Disorder (PTSD), Schizophrenia, Heart Disease, Dementia.


    Some of these names you’ve heard of, several I’m sure you haven’t.. I know there’s several I haven’t, but I have no reason to doubt the authenticity of the other authors of the “30 things you dunno” meme. They are the source of this list. I know there are many others but this gives you an idea of what varied conditions there are that fall under the category “Chronic Invisible Illnesses”. Be aware that 96% of all illness are considered “invisible” and you can’t usually see it.

    How to Act Right When Your Spouse Acts Wrong

    Posted by Kelli on September 7th, 2009


    How to Act Right When Your Spouse Acts Wrong


    $13.50
    How to Act Right When Your Spouse Acts Wrong“I loved this book,” says Lisa Copen, Rest Ministries director. “And the back cover says, if you aren’t married to Jesus this book applies! We’ve all been on both sides of the fence… It’s a great eye-opener to tough questions the Christian community usually buries.”

    How to Act Right When Your Spouse Acts Wrong - Coping with Illness in Your MarriageWhen your husband or wife has a chronic illness there are many times that the relationship is at risk of breaking down in communication. We wonder why our husband copes with depression when the wife has the chronic illness; what happens when you have an illness and then your spouse gets cancer? And the lack of intimacy can threaten the strength of your bond, even when it’s due to chronic illness and health challenges.

    Believe it or not, you can experience what Leslie calls the ”Blessings of an Imperfect Marriage.” At one time or another we have all had the opportunity to act right when our spouse acts wrong, because perfect marriages and perfect spouses don’t exist.

    We know that having a good marriage requires effort and hard work. Yet we often don’t know how to continue to love when we are angry, hurt, scared, or just plain irritated. Do you find yourself fighting with your spouse over every little thing? Are you afraid it could lead to divorce?

    Should we be patient? Forgive and forget? Do something else entirely? This book will help you understand why your spouse acts the way he or she does, learn when to guard your heart, how to respond to difficulties within the relationship in ways in which God would be proud.

    This book will help you discover how God is stretching you in the midst of your marital problems, teach you to respond wisely when wronged, and lead you into a deeper relationship with Christ as you yield your will to his plan for your life and learn to be more like him.


    Author: Leslie Vernick, ACSW, LCSW, is a licensed clinical social worker who has her own private counseling practice and more that twenty years of experience counseling Christians from a biblical worldview. She received her master’s degree from the University of Illinois and is an adjunct professor at Philadelphia Biblical University. She is a popular speaker for women’s groups, couple’s retreats, and professional seminars.


    Random House, Inc., 224 pages, paperback

    Source: http://chronicillnessbooks.com


    Yes, I am aware that this is a article promoting a book, but I think it looks like a book that could be very usefull for many couples, and not just marriages, but other relationships aswell. I’d be intere4sted in any feedback if anyone has read this. It was recommended by a fellow fibromite, Lisa, opn twitter, so I’m trusting her judgement & posting this.

    Welcome…

    Posted by Kelli on May 29th, 2009

    Welcome to my Blog!

    My name is Kelli..  But I am also known online as Neon Rose and it’s variations (I answer to the name Neon, IRL)..  I am also known, in scouting circles as Koolaide – yes, as in the frink (long story, I’ll tell ya some time)

    This blog is about my life, my medial isues and any information I can share thereof..  I have been diagnosed with Fibromyalgia, Endometriosis, Allergies, Sensitivities, Asthma, Irritable Bowel Syndrome (IBS), Depression,  Chronic Fatigue Syndrome (CFS/ME), Hypo active Thyroid, Restless Legg Syndrome (RLS), and a host of other issues that are part and partial to go with the above mentioned. The focus here is going to be mainly on Fibromyalgia (hence the title), but will also include fibro-related issues and Endometriosis.

    Why, you ask, primarily on Fibromyalgia. Well, cuz Fibro is the most significant issue at the moment.. My endo is under control, as is my asthma, RLS, allergies, etc.. Also, Fibromyalgia is also the least understood, most misdiagnosed and under treated condition that I have. If I can just help one other person, then, I’ll feel awesome cuz I have helped someone. (Why do I suddenly have a girl guide song in my head? *shrug*).

    What aspects am I gonna cover? Everything I can. If you look at my categories you will see I plan to cover many areas of traditional and non-traditional medicines including Eastern medical philosophies, faith, as well as non-medical areas of life. I also plan to cover support (financial & emotional) and daily living and coping.

    If you have questions, please feel free to ask.I will do my best to answer.

    Note that all my content does not necessarily belong to me, however sources are always listed and author if available, if it is not original content. Please see disclaimer post for copyright information.

    Categories

    Posted by Kelli on May 24th, 2009

    The sole purpose of this post is to create, and potentially modify categories for this Blog. Initially, I had this categorized list.. Three columns, each with the appropriate title.. That was until I realized, well, I needed a new category.. I don’t have room for 4 columns, so I gave up on that idea . I’m just gonna put ‘em in alphabetical order and then add later as needed.

  • Ability/Disability, Allergies, Alternative Medicine, Alternate Treatments/Medications, Articles, Assisting Devices, Auto-immune disorders, Awareness Ribbons, Anger
  • Behaviour
  • Chemical Sensitivities, Chronic Fatigue Syndrome/ME, Cognitive Limitations
  • Depression and Mental Health, Disability funds [CDN], Disability funds [US]
  • Endometriosis, Exercise, Emotions
  • Fatigue, Fibromyalgia
  • Goodsearch.com, Grooming, Gender
  • Hypo/Hyper-Active Thyroid
  • Intro, Irritable Bowel Syndrome
  • Legislation [CDN], Legislation [US], Links
  • Medications, Memory Impairment, Music
  • Non-medical
  • Pain, Personal, Personal Activities, Physical Limitations, Physicians, Possibilities, PuppyDog
  • Quotes
  • Relationships, Research, Restless Leggs Syndrome, Rest
  • Spirituality/Faith, Spoon Theory, SleepSupport, Stress, Supplements
  • Tips, Twitter
  • Vent
  •