He Gets it!

As some of ya’ll know & some don’t, I’ve been visiting the ER more than usual. In a period of about 6 weeks, I was in the ER *Five Times* due to pain flares of my fibromyalgia. Each visit they gave me demerol, but occasionally torodol.

I have since gotten an emergency appointment with my fibro/pain management doctor. He told that torodol is an anti-inflammatory & wouldn’t work on fibro cuz it is not an inflammatory condition; I knew that, but it will help cfs inflammation. He also told me that demerol is an anesthetic, not a pain reliever that can treat the pain. This I did not know. He also told me that demerol could also be detrimental to my health and that if I do find myself in the ER, I should get morphine. Finally, he said that regular use of Tylenol 3′s is also detrimental to my health. He stated that ER docs should know all that.

He did quite a few things for me. He administered local anesthesia to my lower back to help temporarily block the nerve receptors from registering pain for a few hours until I was able to obtain the rest of the medication. He gave me a prescription for the Fentanyl patch 25mcg/h. One patch lasts about 72 hours. This medication works with the pain centre in the brain. He also gave me percocet, but no more that 3/day. This is for breakthrough pain from the fentanyl patch. A change was also made from lyrica to gabapentin. They are apparently sibling medications, but the gabapentin is covered by my plan, lyrica isn’t.

OMG! A pain doctor who actually gets it and treats it!

  • http://twitter.com/MoonlightReview Erika Stroup

    AHH!! I am so happy for you and know how excited you must be!!

  • http://twitter.com/LdyLarke Shannon

    me too! wish i could get one of those pain patches :D my break thru pain has been thru the roof lately

  • Mzladytee56

    Thank you 4 the info. this has been a up hill battle since b4 2003.  It’s time for me to request that patch!

  • Patsyclinecovergal

    I am so glad he treated you. I was misDX’d FMS-fibro(may still have but with osteo&inflammatory Arthritis,Addisons,possible Dercums,7 yr mixed headache)&CFS which turned out to be CVID(dx2010ish) a primary immunodeficiency requiring IV immunoglobulin. It is criminal how I was treated(heh…or not treated! ). I nearly died of a fall of wagon/NSAIDS from undertreatment on Dec30,2010 before md started fentanyl 12.5mcg in Jan2010(I’d been with them 5 mostly wasted years)…took almost a yr before new pain doc got me to 75mcg…(also allows 4Narco/d). My pain MISmgmt md just threatened to no longer increase my patch as I develop (normal) tolerance & has sent me to a psychiatric outpatient counseling group to learn to live in constant pain. Even refused back & neck injections since they are temporary! Only hope he offers is neurostimulator but my rheumy who referred me said don’t do it after all due to my CVIDS. Plus,I need two devices…1 for headache & one for surgical nerve damage after abdominal surgery in2008. I told him I don’t see how talking about my pain is going to help. My Migraine acted up the next morning…as I was crying&writhing I told hubby …oh,maybe I should call a psychologist to talk about this….ABSOLUTELY IDIOTIC. My point is mds don’t believe in FMS/CFS or think it is only somatizing. I have a laundry list of what they DO believe and have med allergies/reactions so cannot treat my joint destruction but this pain mgmt STILL blows me off. Did just learn he never bothered to obtain my medical records after I am already getting picked up on the short bus 3×wk! I am physically disabled & dependent upon opioids so have to jump if md says so. BUT,my rheumy said I am not a hypochondriac/is fighting for me so hopefully will start getting proper treatment. The group facility is obtaining my records(they forgot till Fri to have me sign!). The psychiatric said a lot won’t apply to me but take what I can from it while he sorts it all out…. Unfreakingbelievable! We Chronic Painers need to no longer permit bullying & negligence anymore but fight back. We are not worthless trash to be ignored.

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